Campaign Launched After Market Harborough Boy Diagnosed With Rare Life-Limiting Disease

A fundraising and awareness campaign has been launched by the parents of a Market Harborough boy who has been diagnosed with a rare life-limiting disease.

Four-year-old Finn Nelson has Duchenne Muscular Dystrophy (DMD), a rare genetic condition which causes all the muscles in the body to gradually weaken, including the heart and lungs.

Finn

Around 100 boys in the UK are diagnosed with the condition every year, but there is currently no cure or real treatment, meaning it is likely Finn will rely on a wheelchair from his early teens.

Finn’s parents, Katie and Matthew, want to make more people aware of the devastating disease and raise money for charity Duchenne UK, which is researching treatments and ultimately a cure.

Katie spoke to HFM’s Nick Shaw:

Finn with Mum Katie

The ‘Fight For Finn’ campaign is being supported by Castle Lane Day Nursery in Market Harborough, which Finn attends and tomorrow a fundraising ‘Duvet Day’ is taking place, in support of the charity, with further fundraisers planned.

Lana Smith is the special educational needs co-ordinator at Castle Lane Day Nursery:

Finn

For more details and to support the campaign click HERE